Information for press
- Press release 03/2013
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press release 03/2013
“DeSScipher” is the 1st international EU granted research project, and currently also the largest research project which was ever conducted for the rare disease Systemic Sclerosis. “DeSScipher” is the acronym for ”to decipher the optimal management of systemic sclerosis”. Aim of this project is to improve the treatment strategies for people with systemic sclerosis, and therefore to help affected patients to get more quality of life living with their disease. It is designed over a period of 3 years and mainly consists of five observational, non-interventional studies to cover different evolution phases of the disease from early functionally relevant manifestations such as digital ulcers and hand arthritis to later more severe organ manifestations such as interstitial lung disease, pulmonary hypertension and severe heart disease. Moreover, "DeSScipher" aims to improve the education of people with Systemic Sclerosis and also physicians, and at the end of the project to achieve a better care for patients by the development of accepted evidence-based clinical guidelines.
More detailed information for people with Systemic Sclerosis, physicans and interested researches are provided on the homepage www.desscipher.eu.