Press release 06/2014
“DeSScipher” stands for ”to decipher the optimal management of systemic sclerosis” and is the largest research project which was ever conducted for the rare disease systemic sclerosis. “Founded by the European Commission (FP7 rare disease project), the goals of this project are to improve the treatment strategies for people with systemic sclerosis, and thus to help affected patients to get more quality of life. Five observational, non-interventional studies have been designed to cover different evolution phases of the disease from early, functionally relevant manifestations such as digital ulcers and hand arthritis to later, more severe organ manifestations such as interstitial lung disease, pulmonary hypertension and severe heart disease. Since start of these trials in April 2013, 1,258 SSc patients have already been screened and 1,061 SSc patients were enrolled into at least on of the five trials. However, the aim is to recruit more than 4.000 SSc patients in total, thus interested SSc patient care centers are still welcome to contribute to the Project.
More detailed information for people with Systemic Sclerosis, physicans and interested researches are provided on the homepage www.desscipher.eu.