Press release 03/2013
Dear Ladies and gentlemen, thank you for you interest in "DeSScipher". With this homepage and press release we want to inform you about the international EU-grant FP7 research project “DeSScipher”, which aims to improve the management of the rare disease Systemic sclerosis to help patients to get more quality of life living with their disease. We would be pleased, if you report about the DeSScipher project. Thank you very much in advance! Kind regards, The DeSScipher Research Team
press release 03/2013
“DeSScipher” is the 1st international EU granted research project, and currently also the largest research project which was ever conducted for the rare disease Systemic Sclerosis. “DeSScipher” is the acronym for ”to decipher the optimal management of systemic sclerosis”. Aim of this project is to improve the treatment strategies for people with systemic sclerosis, and therefore to help affected patients to get more quality of life living with their disease. It is designed over a period of 3 years and mainly consists of five observational, non-interventional studies to cover different evolution phases of the disease from early functionally relevant manifestations such as digital ulcers and hand arthritis to later more severe organ manifestations such as interstitial lung disease, pulmonary hypertension and severe heart disease. Moreover, "DeSScipher" aims to improve the education of people with Systemic Sclerosis and also physicians, and at the end of the project to achieve a better care for patients by the development of accepted evidence-based clinical guidelines.
More detailed information for people with Systemic Sclerosis, physicans and interested researches are provided on the homepage www.desscipher.eu.